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Unraveling Castleman Disease

February 28th, 2019 •
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Unraveling Castleman Disease
FeBruary 28, 2019
Recent Talks

Unraveling Castleman Disease

with  Dr. David Fajgenbaum  
February 14, 2019, 11 AM EST LISTEN
Dr. David Fajgenbaum was diagnosed with a rare disorder that killed 35% of patients within five years of diagnosis. Dr. Fajgenbaum realised that he would have to lead the charge against his rare condition and we are talking to this young doctor about his incredible journey unraveling Castleman Disease. Castleman Disease is a rare disease of lymph nodes and related tissues. This is diagnosed in about 5000 people of all ages each year in the United States. This disorder activates the body's immune system, releasing excess inflammatory proteins that can shut down the liver, kidneys and bone marrow. Dr. David Fajgenbaum, Founding Director of the Castleman Disease Center at the University of Pennsylvania discusses the current understanding of the disease that he himself has had nearly for nine years, symptoms, treatment options and explore new trials and research that are in the offing.
Panelists
Dr. David Fajgenbaum
Mileva Repasky 
Gary Garvina
 
Priya Menon 
February 20th, 2019, 3 PM EST
LISTEN
Eating disorders (ED) are serious and sometimes fatal illnesses that cause the sufferers to become obsessed with food, body weight and shape, and severely disturb their eating behaviour. Common eating disorders include binge eating disorder, bulimia nervosa, and anorexia nervosa. Recent research around the neurobiology of eating disorders has changed the way we address nourishing ED patients during treatment. Where we once thought of food as a symptom, and only important to prevent death by starvation, we now understand the critical importance of early intervention and full weight restoration. These recommendations challenge old paradigms about the cause and meaning of ED symptoms. This talk with Dr Angela Guarda of Johns Hopkins Hospital, Dr Jennifer Gaudiani and nutritionist Therese Waterhous draws out the role of nourishment from the perspectives of someone with lived experience as well as leading clinicians in the medical and nutritional treatment of these dangerous brain disorders.
Panelists
Dr. Angela Guarda 
Dr. Jennifer Gaudiani 
Therese Waterhous
Laura Collins Lyster-Mensh
Tabitha Farrar
Shweta Mishra
January 28, 2019, 5:30 PM EST LISTEN
Nearly 13000 women are diagnosed with cervical cancer in the United States each year and about 68% of all invasive cervical cancer cases diagnosed involve women of childbearing age. Advanced treatments available today allow women to live longer but the same treatments impact their fertility negatively, decreasing their quality of life severely. This makes it important that these women be given options to preserve their fertility before going for cervical cancer treatments. January is Cervical Cancer awareness month, and in honor we addressed the issue of fertility preservation in cervical cancer patients with Dr Julie Lamb, reproductive endocrinologist and infertility specialist at Pacific NW Fertility in Seattle and clinical faculty at the University of Washington. Morgan and Lauren, Cervical cancer ambassadors for Cervivor.org and Allison Pozzi, a Cervical cancer survivor who successfully built her family via IVF (In vitro fertilisation) also shared their experiences and informed the panel.

Panelists
Dr. Julie Lamb
Morgan S Newman
Allison Pozzi
Lauren Lastauskas
Shweta Mishra
For any of the talks dial-in to 718-664-6574 to participate and ask a question LIVE On-Air! Only 50 callers permitted at one time so HURRY!
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TrialX is a clinical research and space health informatics company headquartered in New York City. From launching the first clinical trials app on Google Health in 2008, to powering online patient recruitment and research data collection for space missions, TrialX is empowering clinical research here on earth and beyond.

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