Unraveling Castleman Disease

FeBruary 28, 2019

Recent Talks

Unraveling Castleman Disease

with Dr. David Fajgenbaum

February 14, 2019, 11 AM EST

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Dr. David Fajgenbaum was diagnosed with a rare disorder that killed 35% of patients within five years of diagnosis. Dr. Fajgenbaum realised that he would have to lead the charge against his rare condition and we are talking to this young doctor about his incredible journey unraveling Castleman Disease. Castleman Disease is a rare disease of lymph nodes and related tissues. This is diagnosed in about 5000 people of all ages each year in the United States. This disorder activates the body's immune system, releasing excess inflammatory proteins that can shut down the liver, kidneys and bone marrow. Dr. David Fajgenbaum, Founding Director of the Castleman Disease Center at the University of Pennsylvania discusses the current understanding of the disease that he himself has had nearly for nine years, symptoms, treatment options and explore new trials and research that are in the offing.

Panelists

Dr. David Fajgenbaum

Mileva Repasky

Gary Garvina

Priya Menon

February 20th, 2019, 3 PM EST

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Eating disorders (ED) are serious and sometimes fatal illnesses that cause the sufferers to become obsessed with food, body weight and shape, and severely disturb their eating behaviour. Common eating disorders include binge eating disorder, bulimia nervosa, and anorexia nervosa. Recent research around the neurobiology of eating disorders has changed the way we address nourishing ED patients during treatment. Where we once thought of food as a symptom, and only important to prevent death by starvation, we now understand the critical importance of early intervention and full weight restoration. These recommendations challenge old paradigms about the cause and meaning of ED symptoms. This talk with Dr Angela Guarda of Johns Hopkins Hospital, Dr Jennifer Gaudiani and nutritionist Therese Waterhous draws out the role of nourishment from the perspectives of someone with lived experience as well as leading clinicians in the medical and nutritional treatment of these dangerous brain disorders.

Panelists

Dr. Angela Guarda

Dr. Jennifer Gaudiani

Therese Waterhous

Laura Collins Lyster-Mensh

Tabitha Farrar

Shweta Mishra

January 28, 2019, 5:30 PM EST

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Nearly 13000 women are diagnosed with cervical cancer in the United States each year and about 68% of all invasive cervical cancer cases diagnosed involve women of childbearing age. Advanced treatments available today allow women to live longer but the same treatments impact their fertility negatively, decreasing their quality of life severely. This makes it important that these women be given options to preserve their fertility before going for cervical cancer treatments. January is Cervical Cancer awareness month, and in honor we addressed the issue of fertility preservation in cervical cancer patients with Dr Julie Lamb, reproductive endocrinologist and infertility specialist at Pacific NW Fertility in Seattle and clinical faculty at the University of Washington. Morgan and Lauren, Cervical cancer ambassadors for Cervivor.org and Allison Pozzi, a Cervical cancer survivor who successfully built her family via IVF (In vitro fertilisation) also shared their experiences and informed the panel.

Panelists