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Multiple Myeloma Survival Rates FINALLY Show the Improvement we had hoped and prayed for!!!!!
I must apologize for the tone of my last post about the new data from The National Cancer Institute. They had updated the SEER data on 4/24/13, and the average life expectancy remained at 4 years, and I had expressed disappointment and understated the most important finding in the data. That finding was that the first year survival rate had taken a significant leap forward with an improvement of 19% o [...]
- By: ifood.tv
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Plan B
Yesterday I completed my final “test” walk in a series of trial walks that started a month ago to see if training for a future marathon might be doable. The plan was to do the Portland marathon this October ( my 3rd time) and then hopefully obtain a qualifying time to enter Boston in 2014 [...]
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Pat’s surgical update: Monday morning
I’m home! Pattie was having transportation issues taking me home on Monday–and I was feeling surprisingly good–so we checked-out around 6 o’clock Sunday evening. I chased the doctor down the hall using my walker trying to get him to change is orders from Monday to Sunday. The fact I could catch him that way may [...]
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Research Update: Racial/genetic factors, HDAC inhibitors and Daratumumab
There is a lot going on in the world of myeloma research. Fortunately for us, it seems like these hard working scientists never sleep! And things certainly don’t stop because I’m in the hospital having a hip replaced! To start, here’s a link to an interesting research paper that was published in the latest edition [...]
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Made it! Fun and loopy? Try sore and tired…
I wouldn’t describe hip replacement surgery as a walk-in-the-park, but so far, so good! From what they tell me, my procedure started right on schedule. Two hours later they were closing-me-up with staples, not stitches. The first thing I remember was waking to a deep, throbbing pain in my right thigh. At least I know [...]
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Special thanks to my fans at Fox Valley Credit Union!
Thank God things are moving much faster today,and they are ready to move me from pre-op holding to the operating room. Probably not the best time to be trying to organize a bunch of technical information to you; I’ll finish that post later. In the meantime, I would like to thank all of you that [...]
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Play-by-play of an unbelievable day!
Want to know the worst part about yesterday’s disaster? Making phone call after phone call on the long ride home, explaining why my surgery had been postponed after I spent an entire day prepped and ready to go in the pre-op holding area. Here’s the time-line and play-by-play: Pattie and I arrived at Moffitt Cancer [...]
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I didn’t know they have “do-overs” in surgery…
I’ll keep this short and save the details for tomorrow. I hate to disappoint all of you, but I’m not “loopy and feeling no pain.” As hard as it is to believe, Pattie and I learned my hip replacement and been scratched-off the surgical schedule for today. We sat stunned as Dr. Cheong approached us [...]
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Observations from pre-op
Yesterday I promised to keep you updated about today’s hip replacement surgery,” blogging live–cold and hungry–from my surgical suite.” Well, I’m laying here waiting to be wheeled-back for surgery. IV is started, prep work is done. I’m not cold, because they have me hooked-up to a warm blower that fills my surgical gown with hot [...]
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Want to improve your Multiple Myeloma Prognosis? Just ask, “What would Mayo do?” – Gary Petersen
For the thousands of patients living all over the world who do not live near a myeloma center of excellence, who’s insurance will not approve a center of excellence, or who cannot obtain or afford a second opinion. What do you do? How can you improve your life expectancy prognosis and survival rate. [...]
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