Cytoxan/Kyprolis/dex knocks me out on infusion days

As a titillating tease for an upcoming series of posts, I met for an hour and a half with Mayo Clinic’s Head of Hematology this morning, Dr. Asher Chanan Khan.  But that comes later.  Today I wanted to update you about how I feel after completing my second day of therapy.

I received a message on Facebook today from a patient that was dreading her next two Kyprolis infusions.  That’s how its done; back to back days.   I understand her trepidation, since after completing my second infusion late this afternoon.  I staggered home, fell into bed and slept over two hours.

Everything in my body was stiff–even my eyelids.  I’m feeling a bit better now.  Just hung-over.  Piece of cake when compared to recovering from a stem cell transplant!  But still no fun.

Yesterday’s Cytoxan probably didn’t help.  Nor did the IV Benadryl.  Not sure if anti-nausea drug they used makes me sore or sleepy, too.  Probably.

CCd.  That’s the acronym Dr. Chanan-Khan gives Cytoxan, Kyprolis (carfilzomib) and dexamethasone.  One thing all of the specialists I consulted agree on: this should work.  But for how long?  Its what comes next where everyone disagrees as I try to stay one step ahead of my cancer.

Feel good and keep smiling!  Pat

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