Patient Engagement and Clinical Trials Technology Highlights at Dpharm2017
by Shweta Mishra
The first week of September in Boston, at the Dpharm2017 conference, it was all about talks around disruptive innovations and advancements in the use of mobile technology in the field of clinical research. Our CEO was there to demo our DIY research study app building platform Appbakery in a live tech demo and showcase our patient recruitment management platform iConnect 2.0.
Appbakery got a good reception and we got audience appreciation in being among the ones to get a good round applause. Our CEO, Dr. Sharib Khan explained how we are turning clinical trial upside down with Appbakery by literally doing a headstand for the audience. Here is the link to the video and some highlights from Day 1 of #dpharm2017 #mobileclin2017
In our presentation on September 7, Day 2 of Dpharm2017, our CEO Dr. Sharib Khan talked about transforming patient recruitment at the enterprise level with iConnect 2.0. iConnect is specifically designed to facilitate patient-recruitment for academic medical centers, sponsors, and patient advocacy groups. iConnect allows investigators to improve online awareness of their trials, communicate with interested participants, and monitor recruitment metrics. iConnect’s award winning technology leverages online mechanisms to streamline the clinical trial recruitment process. It allows automated clinical trial import, recruitment tracking and analytics, a configurable pre-screener, secure patient investigator messaging, semantic search technology and more.
Dpharm Idol Contest
Every year Dpharm awards a Dpharm Idol Contest Winner for the most disruptive innovation of the year. PhysIQ was the winner this year! The judges selected their PPA platform as the most disruptive innovation of the year. Through this platform PhysIQ team aims to provide real world physiological insight to validate the safety and efficacy of therapeutic products.
Other companies that participated in this contest were OutcomeHealth, Deep6ai, eClinical Solutions, PatientWing, and PrevailInfoworks.
Blockchain in healthcare
Use of blockchain to improve healthcare delivery was a much talked about topic at the conference this year. Thought leaders like Dr Sascha Mundstein, Mobile and Digital COE, Technology Evangelist, Pfizer, Inc who led the session discussed how blockchain can provide transparency, integrity, and clarity to the healthcare system.
Clinical Disruptions by Patients
Open Artificial Pancreas System (OpenAPS) Project and Spontaneous Coronary Artery Dissection (SCAD) Research Program were the two key clinical trial research disruptions discussed at Dpharm2017.
Dana Lewis, the creator of the Do-It-Yourself Pancreas System, and founder, OpenAPS, shared how the APS technology is being made widely available to type 1 diabetes patients who are willing to participate in clinical trials.
Sharonne Hayes, MD, Principal Investigator, Mayo Clinic SCAD Research Program, Mayo Clinic highlighted the power of patient-initiated research and crowdsourced science while discussing the Spontaneous Coronary Artery Dissection (SCAD) Research Program. She shared how Mayo Clinic engaged many patients from around the globe, through crowdsourcing, to perform extensive SCAD research.
Other patient advocates who share their stories at the conference were:
- John-Peter Bradford, PhD who shared a personal story of loss due to cancer and his motivation to change the way the healthcare system looks at protocols in research for lethal diseases.
- Jessica Melore gave an opening patient keynote during the “Ask the Patient” program on 7th Sep. As a heart transplant recipient shared her life-changing experiences during keynote.
- Sara Krug, CEO, Cancer 101, served as the chair of the DPharm Idol judging committee and also helped patients in the “Ask the Patients” program.
- Bray Patrick-Lake from Duke Clinical Research co-chaired the session.
The ADAPTABLE (Aspirin Dosing: A Patient-Centric Trial Assessing Benefits and Long-Term Effectiveness) study is a great example of use of technology to enhance patient engagement and clinical trial participation. Adrian Hernandez, MD, Co-Principal Investigator, PCORnet, explained how patients were actively engaged in the design, conduct, oversight, and dissemination throughout the study. ADAPTABLE study is a 3 year long clinical trial that will compare the effectiveness of two different daily doses of aspirin widely used to prevent heart attacks and strokes in individuals living with heart disease. In this trial, patients are being reached out to electronically via email and via a patient portal.
Wearables & Invisibles
Tushar Parlikar, Program Manager at Verily Life Sciences, discussed the requirements that healthcare professionals need to follow to scale the deployment of wearables in clinical trials during his Mobile in Clinical Trials presentation.
Researchers from MIT presented their innovations around redefining clinical trial endpoints from wearables to invisibles. MIT Professor, Dina Katabi demonstrated Emerald, a new technology using ambient radio signals to allow in home clinical trials.
You can read more about some disruptive wearable technologies presented at the conference here.
Thanks for providing a great platform to share and learn all about groundbreaking disruptions @Conference Forum. The 8th annual DPharm event will be held on September 25 and 26, 2018. We look forward to it!