Featured Blog Posts
- Nationwide myeloma support group broadcast tonight
Tonight I’m taking part in an experiment. With the help of Priya Menon and the team at Cure Talk, we will be launching an on-air, nationwide multiple myeloma support group. The broadcast will begin at 6 PM Eastern time. Due to a scheduling snafu, it happens to air at the same time my local support [...]
- By: ifood.tv
- How to run like a severe asthmatic, by Bill Swan
Saw this blog post by Bill Swan and liked it so much I just had to re-post it here. Bill provides us with a step by step instruction guide on how to run like a severe asthmatic. ( I think the photo says it all, don’t you?) Read more about Bill on his blog at [...]
- Exercise & Multiple Myeloma (Part Two)
I think Danny’s column this week is exceptional. See what you think: Exercise & Multiple Myeloma (Part Two) Interleukin-6 While there is no conclusive research showing benefits from exercise on myeloma, the circumstantial evidence from scientific sources is so compelling, that not to tell you about it would seem unconscionable. The available information indicates that [...]
- Multiple Myeloma Support Groups SAVE LIFE and improve life expectancy – None in your area! You can now join the Cure Panel on line Support Group !
I have written in the past that one of the best things your could do is to become your own best advocate, and that knowledge is Power and can SAVE LIFE for the multiple myeloma patient. Support Group membership is one of the key ways to obtain this knowledge, and I wrote a blog post called, [...]
- What happens if your caregiver can’t help anymore?
70% of multiple myeloma patients are over 70 years old. So it isn’t unreasonable to anticipate that a wife or husband–currently acting as caregiver–might be blindsided by a serious medical setback themselves. What then? Do you have a contingency plan? That’s the challenge my wife, Pattie, and I faced this past weekend. Pattie has been [...]
- What Do Schizophrenia, Bipolar Disorder, ADHD, Depression and Autism Have in Common?
Our CureTalk Mental Health Panel Discussion is coming up on Tuesday and I can’t wait! I think it’s going to be wonderful, both for us as panelists and for the listeners. This is the first time I’ve ever participated in something like this, so it’s very exciting. If you’re interested in tuning in on Tuesday, [...]
- Unexpeced Mother’s Day hiccup leaves us searching for answers
What do we do when our caregiver is unable to help us? Pattie has been having medical issues for years. Still undiagnosed, her wrists are mangled and painful. Her back seizes-up on her, often with no warning. Her joints swell and I can see the pain and fear in her eyes. I don’t write about [...]
- Patient Snapshot Update: John Knighten needs our prayers!
I often describe how living with multiple myeloma is like riding a roller coaster. In the beginning, the bottom falls-out and you drop screaming. Then you slowly climb-up, often doing things you never dreamed you could. At that point its a relatively easy ride around the corner and up and down a few minor bumps. [...]
- THE MONEY SHOT!
Enough of the hospital gown shots already! But I have received some really fun emails from readers, teasing me about “showing more skin.” I think we’ve all had the feeling from time to time that we are being watched. Remember a few days ago when I wrote I was suspicious of Pattie; the way she [...]
- Exercise & Multiple Myeloma (Part One)
I recently referred to fellow Floridian, Danny Parker, as a MMB “lifestyle columnist.” I had labeled him as our nutritional columnist, but understanding the breadth of Danny’s experience, I don’t think that’s sufficient anymore. Danny is a published author, scientist and engineer. He is also a Zen Buddhist priest, making Danny a modern day Renaissance [...]