Featured Blog Posts
- Play-by-play of an unbelievable day!
Want to know the worst part about yesterday’s disaster? Making phone call after phone call on the long ride home, explaining why my surgery had been postponed after I spent an entire day prepped and ready to go in the pre-op holding area. Here’s the time-line and play-by-play: Pattie and I arrived at Moffitt Cancer [...]
- Want to improve your Multiple Myeloma Prognosis? Just ask, “What would Mayo do?” – Gary Petersen
For the thousands of patients living all over the world who do not live near a myeloma center of excellence, who’s insurance will not approve a center of excellence, or who cannot obtain or afford a second opinion. What do you do? How can you improve your life expectancy prognosis and survival rate. [...]
- Gary Petersen Blogs On Cure Panel Talk Show with MD Anderson’s Dr. Robert Orlowski
Gary Petersen, editor myelomasurvival.com and co-host of the recently held Cure Panel Talk Show with Dr. Robert Orlwoski from MD Anderson gives a good, comprehensive summary of the panel discussion. Multiple Myeloma – MD Anderson’s Dr. Robert Orlowski speaks on “Exciting New Drugs and Combinations for Myeloma” or Why survival rates and the life expectancy [...]
- Mental Health and Public Policy Update
On April 18th, the Mental Health Awareness and Improvement Act of 2013 (S. 689) passed in the Senate with a 95-2 vote. The bill was sponsored by Democratic Senator Tom Harkin of Iowa. The purpose of this bill is to reauthorize and improve programs related to mental health and substance use disorders. While the Senate [...]
- Everything that you ever wanted to know about myeloma but were afraid to ask!
When I was first diagnosed, I remember scouring the web for information. I was eventually able to piece things together in drips and drabs. But my quest was emotionally draining. Too many promising reports sites turned-out to be dead ends. I have tried to remedy that a bit by summarizing the things I think are [...]
- Fear Of Talking To Strangers: Learning How to Socialize – Jennifer Myers
My husband John and I had a great session with the therapist last night. I went to a writers conference on Saturday in San Francisco and had the opportunity to get feedback on my memoir pitch. I also pitched my memoir to a few agents, editors and publishers. I came back with a new plan [...]
- A look back on an amazing support group visit to Grand Rapids, Michigan (Part One)
Last year was crazy busy for me. I covered ASH, ASCO and the IMF’s Support Group Leader’s Summit in July. I also visited a dozen or more support groups. One of the groups I spoke to was in Grand Rapids, Michigan. Led by Harold and Sue VanDuyn, the group is filled with determined, optimistic patients [...]
- How Can We Achieve Our Highest Potential?
One of the biggest myths about the human brain is that we only use approximately 10 percent of its capacity. According to most scientists, this is a myth that has been promoted over the years by the media and advertisers. If we believe that we really do only use 10 percent of our brain’s capacity, [...]
- Exciting Updates: daratumumab and duloxetine (Cymbalta)
There were two exciting new legal and research developments earlier this week. First, a company called Genmab, announced that the FDA has fast tracked their experimental immunotherapy drug, daratumumab. Later, JAMA published results of a new Phase 3 study using duloxetine (Cymbalta) in patients with peripheral neuropathy (PN) caused by chemotherapy. Here are the details: [...]
- Yoga & Me: How Yoga Healed Me
Even though my father has been practicing yoga for many many years now, I had never quite taken to this particular practice, till quite recently. My reasons for not taking to the practice of yoga, ranged from it is too slow, it looks difficult (all the asanas/ postures, looked tough) etc. But all [...]