Featured Blog Posts
- Relapse review: What should Pat do next?
I hadn’t planned to write a follow up post about me today. But I can tell from the flood of emails and comments I’ve been getting that some readers are concerned I’m sitting back and not doing enough to battle my relapse. And there does seem to be some confusion about my treatment plan moving […]
- Crashing blood counts and nagging bone pain make life challenging
Little by little my quality of life is diminishing. It isn’t one single thing; it’s cumulative. Yesterday it played out this way. I was able to do much of what I normally would do: write my daily post, answer email, walk the dog with Pattie, trim some bushes and help clean the pool. But nothing […]
- Hope for a cure: Tom’s allo transplant journey (Part Thirteen)
Lucky 13! Whitney says Tom is doing much better now. Here’s an update: Wednesday, March 19th Hi Pat, Sorry for the delay getting back to you. I had to return to mom mode and give the kiddos my full attention. Had 5 fun filled days of bounce houses, bike rides, donuts, make overs, arts and […]
- Risk of developing MGUS varies by race and region
Let’s shift gears today and focus on what researchers are learning about a surprisingly high number of people that develop MGUS; a possible precursor to multiple myeloma. I found some fascinating statistics about MGUS in a recent article on Oncology Nurse Advisor.com. Read it and see what you think: Precursor of multiple myeloma more common […]
- Allo transplants an elective procedure? Not for the feint of heart!
We’ve been following three different allogeneic (donor) transplant patients this year; Tom, Neil and Jim. It’s a small sample, but it seems to be representative of the risk/reward associated with having one. I thought I would give everyone a chance to take a break and decompress after learning of Neil’s passing. But after touching base […]
- Jim Bond overcomes GVHD with help from Boston Foundation for Sight
Yesterday I wrote about how well former Patient Snapshot and recent allo (donor) stem cell transplant recipient, Jim Bond, was doing. I briefly mentioned that Jim had been having problems with his eyes. Apparently things have improved. But according to his wife and caregiver, Kathleen, it’s been a real struggle. I was fascinated to learn […]
- Medical Update: no good news yet
A month ago I wrote a post explaining why my doctors and I had agreed to give Revlimid one more shot before moving on to a new therapy: RVD; do your magic one more time! It’s now been almost six weeks, and I have the first SPEP results since my radiation oncologist discovered several […]
- A cautionary tale: Neil’s allo transplant gone wrong (Part Three)
For the past two days I’ve shared details about Neil’s allo transplant recovery from hell. Pulling his story together has caused me pause; I can’t imagine putting Pattie through something like this. But things were looking up. Hopefully the worst was behind them. Neil’s wife, Pat, emailed me this update a few weeks later: Hi […]
- Tom Brokow has Multiple Myeloma - The Skin Cancer? No! The Blood Plasma Cell Cancer Where 1 in 5 Patients Die in The First 60 days! Myeloma GETS NO RESPECT!
- Innovative therapy combines radiation and immunotherapy
Myeloma cells are so sensitive to radiation, I have often wondered why radiologists don’t simply radiate a patient to the point that myeloma cells are destroyed throughout their body. mPatient founder, Jenny Ahlstrom, recently interviewed noted researcher and Professor of Medical Oncology, Dr. Damien Green, about his work combining immunotherapy and radiation. In this excerpt, […]