Featured Blog Posts
- Sorry I’m late! Difficult travel day…
I had it all planned-out: arrive at the airport early so I could work and complete and post today’s news. But 12,000 Northwestern Mutual Life conventioneers had other plans! It took me an hour to check my bag and make it part way through an endless security line, only to realize I was about to [...]
- Lisa Ray & Kathy Giusti: Inspirational myeloma heroines
I wanted to share media profiles about two of the most high profile multiple myeloma survivors: Lisa Ray and Kathy Giusti: Lisa Ray Tells Her Story One Sari at a Time Huffington Post – Canada By Anjum Choudhry Nayyar Sometimes when you meet someone you never forget the feeling you have after talking to them. [...]
- Multiple Myeloma News
The myeloma world doesn’t stop turning just because I”m out of town visiting my father. Let’s catch-up on a few important odds ‘n ends today. First, I received an email from a reader, questioning the value of the Mayo Clinic retrospective study that Danny Parker and I reported on yesterday. The issue: the study or [...]
- Groundbreaking news that was overlooked at ASCO 2013
Before ASCO even got started the first week of June, our lifestyle columnist and my good friend, Danny Parker, alerted me to an incredibly important abstract that we both knew would get lost among all of the hype. A retrospective study conducted by myeloma specialists at Mayo Clinic, it revealed some groundbreaking overall survival (OS) [...]
- Could I ask a favor?
I know many of my readers here at MMB have also ordered and read one or more of my books. I continue to search-out ways to get my books in the hands of patients, caregivers, families and friends that need the information, but don’t want to sift through all of the noise online; or maybe [...]
- A rabbi, stock broker and Celgene exec walk into a bar…
Before I get started this morning, I wanted to share some sage advice that I received from one of my regular readers after they learned I was struggling with my father’s life nearing the end: My father died suddenly a few weeks before his 39th birthday. I was eighteen at the time, my sister 11. [...]
- My new hip is healed. Not sure I can say the same emotionally…
I had an early appointment with the specialist that performed my hip replacement surgery this morning, so I’m late getting back to you. That’s not all I had going this am. I also stepped across the street from Moffitt Cancer Center’s main clinic building to visit the psych department. I’m serious about following-up and seeking [...]
- HDAC inhibitors work great in the lab. Why not better in patients?
This weekend I shared how I was becoming anxious and frazzled with the added responsibility and concern for my dying father. The mental and emotional health of myeloma patients and caregivers is an under-served and rarely addressed part of our lives. You know me; I’m not going to let this go. I will get back [...]
- Please keep those emails and comments coming!
Yesterday I shared my feelings of being overwhelmed since my father’s “turn for the worse” recently. Rack-up more phone calls and travel to my growing to-do list. Although sometimes I pause before I hit the PUBLISH button after I write such a personal entry, I almost always go ahead and post it. It isn’t fair [...]
- Multiple Myeloma Survival – Please remember to LIVE!
Sorry friends for the absence, but I have been entirely too busy living, and have not been thinking much about Multiple Myeloma or this web site. This has raised a question in my mind that maybe we all need to remember to just LIVE our lives and somehow leave Multiple Myeloma in the back of our minds, if at all possible. This is so easy to say but much harder to do. We recently moved to Atanti [...]