We are happy to announce that Cure Talk Panel Show is conducting its’s Live On-Air Myeloma Support Group Meeting on Thursday, June 27 2013 @ 6pm ET. This will be the second meeting of our monthly Myeloma Support Group Meetings started in May 2013. The aim of our meetings is to help all of you who do not have a support group near your home. This is our online myeloma support group with monthly meetings.
Our topic for the meeting- “Be Your Own Best Advocate: Becoming an Empowered Patient!”
Register NOW! Only 50 Callers!
Registered participants have to dial in and share their stories with us. Only the first 50 people to have registered will have an opportunity to ask questions live on-air to our support group meeting leaders, other participants can dial in and listen to the show. However, everyone can submit their questions to firstname.lastname@example.org and our support group meeting leaders will try and answer each question live-on air during the meeting. All callers can listen to the meeting. The link to the talk will also be made available later on our website.
What does it mean to be an empowered patient? Well, it means having all resources you need to fight your disease and living a normal life. It is good to have knowledge of all ongoing research and clinical trials in multiple myeloma in your area, to know about availability of various financing options for your disease treatment, to know other patients and care-givers in your locality. For all of you who might not have a local myeloma support group, Cure Talk’s Live on-air Myeloma Support group and our monthly on-air meetings are the place to find out all you want to know about living with myeloma.
This is an opportunity for all myeloma patients, care-givers and their families to share their myeloma journey with us and ask questions to our experienced support group meeting leaders. Our support group meeting leaders are Pat Killingsworth, Sue VanDuyn and Cynthia Chmielewski.
Myeloma Beacon columnist and blogger, Pat was diagnosed with multiple myeloma in April 2007 at age 51. Pat is an author of four myeloma books Pat’s books include, Living with Multiple Myeloma, Stem Cell Transplants-A Patient’s Perspective, and New Multiple Myeloma Therapies, and Financial Aid for Myeloma Patients and Caregivers. Pat also maintains two blogs, Living with Multiple Myeloma and Help with Cancer.
Caregiver Sue VanDuyn has been married to Harold for almost 24 years. Harold was diagnosed three years ago with MM, had a stem cell transplant in September, 2010, and has been in stringent CR ever since the transplant. With the help of the Int’l Myeloma Foundation, Sue and Harold started a myeloma support group for the West Michigan area in June, 2011. Sue volunteers for the International Myeloma Foundation (IMF) as a caregiver advocate and travels to Dallas, Texas each July to assist the IMF at their annual Support Group Summit.
Cynthia Chmielewski is a Jersey Girl! Cynthia was diagnosed with Stage 3 Multiple Myeloma in 2008 and began treatment with novel therapies immediately. Cynthia is an active member of the Philadelphia Multiple Myeloma Networking Group, a trained mentor, and participates in several online communities. She also is very active on Twitter (@MyelomaTeacher).
Myeloma Support Group Meeting Format
6.00 pm – Conference call starts.
6.01 pm – Moderator welcomes support group meeting leaders.
6.02 pm – Leaders introduce themselves.
6.17 pm – The meeting is opened up for callers.
6:59 pm – Moderator thanks co-host, panelists, and participants.
7.00 pm – Call comes to an end.
Register here or mail email@example.com
We’re looking forward to hear your myeloma story and help you Become Your Own Best Advocate!
- Cure Panel’s First Live On-Air Myeloma Support Group Meeting on May 15 @ 6pm EST – UPDATE
- On-air myeloma support group meeting launches Wednesday, May 15th at 6 PM
- Orange County Multiple Myeloma Support Group meeting recap
- Every community large enough to support a stand-alone cancer clinic should also feature a multiple myeloma support group
- Multiple Myeloma Support Groups SAVE LIFE and improve life expectancy – None in your area! You can now join the Cure Panel on line Support Group !