Follow myeloma patient perspective blogs from ASH

The International Myeloma Foundation (IMF) is working with a group of support group leaders from across the country here at ASH–and I’m one of them!  Our mission is to use social media, blogging and video blogging to help communicate with other myeloma patients and caregivers.  The hope is that sharing what we learn from a patient’s perspective will help reach others like us worldwide.

I’m working with some amazing support group leaders here.  They understand how important it is to get up-to-date information out to their group members.  But in this case, our “group” is the worldwide myeloma community!  An ambitious goal, to be sure!

If you go to the IMF’s website and hover your cursor over the blog tab at the top of their homepage on the far right hand side, you can click-on the second drop down category, IMF at ASH 2012.  There you can follow a number of ASH blogs–including mine.

Here is a link to my first IMF post from here at ASH in Atlanta:

A Patient’s Journey: They’re Talking About ME!

But please don’t stop after reading my posts.!  Yelak Biru is a 17 year survivor from Texas.  You will want to read what he has to say.  Similarly, Californian Jack Aiello is also an exceptionally long-lived survivor, as is Nebraskan physician Jim Omel.  All bring an experienced perspective to news from the meetings.  I’m one of the myeloma “youngsters” here–I have only been around for a relatively short five and a half years since I was diagnosed back in April, 2007.

Is a researcher here presenting data that may lead to a cure?  Possibly.  Are we expecting to see subtle and  incremental improvements in overall survival numbers along several fronts?  Absolutely!

Today, I’m attending sessions that examine progress made by immunotherapy agents, carfilzomib, pomalidomide and a mysterious new Chinese drug that doesn’t even have a name yet.

Of course the biggest myeloma related news breaks on Monday.  I will keep you updated here and on my site.

Feel good and keep smiling!  Pat

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