I’m excited to be facilitating a discussion among several of my fellow patient bloggers Monday. The conversation will feature topics that are often too “hot” for politically correct physicians to deal with on the record.
Instead of re-inventing the wheel, here is an online promo for our panel discussion:
Hurry and Register! Pat Killingsworth Discusses Myeloma CURE versus CONTROL on Monday 29 October 2012 @ 7pm EST on Myeloma Cure Panel
Myeloma Cure Panel talk show on Blogtalkradio is going to address the very controversial topic of Myeloma CURE versus CONTROL on Monday 29 October 2012 at 7pm EST.
Noted myeloma blogger, advocate, and author, Pat Killingsworth, is co-hosting the show this time and would be tackling the topic with panelists, Nick Van Dyk, Gary Petersen, and Jack Aiello.Dial-in to listen to the discussion and ask a myeloma question.
To register, CLICK HERE.
Only 50 people are allowed to hear the broadcast Monday night. But not to worry! I would like to point-out that it isn’t necessary to participate–or even register–in order to listen to the discussion.
Event sponsors from Cure Talk will post a link to the broadcast Tuesday. That way you can listen when it is convenient for you–and email or comment on my blog if you have questions or comments.
I’m not sure if I’m supposed to do this or not, but here are the questions I plan to ask my fellow patient bloggers Monday evening:
Questions:
- Right now there are two possible therapies that might “cure” select patients; donor transplants and Total Therapy. My question is this: From a patient’s perspective, are either of these intensive therapy options worth the risk of a possible cure?
- What does “quality of life” mean to you? How poorly would you have to feel before deciding to stop a therapy that might significantly extend your life?
- Specifically, if you were given the option of living five years relatively drug free, or six years using aggressive maintenance therapy all six years- complete with a long list of side effects – which would you chose and why?
If there’s time:
And what about transplants? Would you agree to undergo a stem cell transplant, knowing that it might only extend your life one extra year – with three or four months spent recuperating?
The last question intrigues me. This is the kind of situation patients with a number of other, more difficult to treat cancers face everyday. And a number of our fellow myeloma patients face this question once they move into the murky, uncertain world of salvage therapy.
I hope you will be among the first 50 to register, so you can listen-in live on Monday–or even ask a question or answer one on-air.
OR
Listen to a link to the broadcast later in the week.
And a third option just occurred to me. Comment or email your questions to me ahead of time and I will try and ask them on the broadcast.
Feel good and keep smiling! Pat