We have a number readers who suffer from both multiple myeloma and/or several other hematological disorders, including amyloidosis and myelodysplastic syndromes (MDS).
Prognosis and treatment options are often eerily similar to multiple myeloma. For example, Velcade, Revlimid and stem cell transplants are common therapies for a lot of amy and MDS patients as well.
Recently I heard from a concerned caregiver named Pete. Pete’s wife has cardiac amyloidosis. He wondered if I ever write articles about new drugs for amyloidosis.
Pete also forwarded me a link to this excellent amyloidosis information source:
I have been monitoring a lot of amyloidosis research news lately. And Pete, I must tell you that much of it is much more technical than the multiple myeloma news I cover.
Like myeloma, there seem to be dozens of different types of amyloidosis. But for better or worse, most multiple myeloma is treated roughly the same way.
Trying to follow and understand amyloidosis research is crazy hard! Maybe because it tends to affect organs like the heart and liver. But I figure if I’m having trouble following this stuff, the majority of my readers will, too.
So I’m not sure how much I’m going to be able to help you, Pete. You already know a lot more about amy than I do!
There is one way that I might be able to help. I will keep my eyes and ears open for any new research and therapy developments that look like they might affect a large group of patients at ASH and ASCO.
One piece of great news: Pomalidomide–an exciting new multiple myeloma drug–looks like it is going to work for a lot of amy patients, too.
Good luck to both you and your wife, Pete! And thanks for reading.
Feel good and keep smiling! Pat