Pat Killingsworth Pat Killingsworth

Good News!

I’m breathing a sigh of relief right now.

After waiting more than a week due to holiday week delays, I finally learned my M-spike dropped from 0.3 to 0.2. last month.

This is good news.  Not fantastic news, but very good news.

After my first six week cycle on RVD (Revlimid, Velcade and dexamethasone), my M-spike number was cut in half, down from 0.6 to 0.3.

Five weeks later, I had hoped the number might drop a bit more dramatically.

The bottom line:  I’m right back to where I started before this summer’s transplant.

But setting emotional conflicts aside, the great thing about this number is it confirms that the RVD is working and my myeloma is once again under control.

The short term frustration with all of this is that I’m sure I will be stuck on full RVD dosing (Velcade once weekly sub-q, 25 mg Revlimid 21 days on–7 days off–and 40 mg dex each week) for at least two more, 6 week cycles.

The side-effects have been worse than they were when I was on RVD during induction before my transplant.

I wrote about my challenge of dealing with these RVD side-effects in this month’s Myeloma Beacon column yesterday:

Pat’s Place: My Treatment Side Effects Keep Changing

Congratulatory comments and emails began flooding-in as soon as my column was published.  I am so grateful for all of your prayers and support.

Guess you are all going to be stuck with me for a few years longer.

Hopefully I’ll get two or three more books written before the next crisis.  I’m in the middle of the draft for a book which will be titled New Myeloma Therapies from a Patient’s Perspective.

And with the help of my good friend and fellow multiple myeloma patient, Richard Blustein, I have started researching a book (yet unnamed) about ways to help all of us better navigate the difficult financial burdens living with multiple myeloma can place on our families.

In the meantime, I’m taking a short flight today to Charlotte, North Carolina to speak to a support group there tomorrow morning.

Staying busy helps me deal with the uncertainty, pain and inconvenience I encounter every day.

And yes, I do get a chance to take some down time and walk along the beach.

There’s a reason this guy is smiling!  Hope you can feel good and keep smiling, too!  Pat